Family Experiences with Coordination of Care (FECC) -7: Care coordinator assisted with specialist service referrals

The Family Experiences with Coordination of Care (FECC) Survey was developed to gather information about the quality of care coordination being received by children with medical complexity (CMC) over the previous 12 months. The FECC Survey is completed by English- and Spanish-speaking caregivers of CMC aged 0-17 years with at least 4 medical visits in the previous year, and it includes all of the information needed to score 20 separate and independent quality measures, a sub-set of 8 of which are included in this submitted measure set. CMC are identified from administrative data using the Pediatric Medical Complexity Algorithm (PMCA)1, which uses up to 3 years’ worth of International Classification of Diseases—9th Revision (ICD-9) codes to classify a child’s illness with regard to chronicity and complexity. CMC are children identified by the PMCA as having complex, chronic disease.

The full NQF submission includes a set of 8 of the FECC quality measures; this submission relates to FECC 7, described below. The short descriptions of each quality measure follows; full details are provided in the Detailed Measure Specifications (see S.2b):

2842: FECC-1: Has care coordinator
2843: FECC-3: Care coordinator helped to obtain community services
2844: FECC-5: Care coordinator asked about concerns and health changes
2845: FECC-7: Care coordinator assisted with specialist service referrals
2846: FECC-8: Care coordinator was knowledgeable, supportive and advocated for child’s needs
2847: FECC-9: Appropriate written visit summary content
2849: FECC-15: Caregiver has access to medical interpreter when needed
2850: FECC-16: Child has shared care plan

Each of the quality measures is scored on a 0-100 scale, with higher scores indicating better care. For dichotomous measures, a score of 100 indicates the child received the recommended care; a score of 0 indicates that they did not. Please see Detailed Measure Specifications (see S.2b) for additional measure-specific scoring information.