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Serious Illness Survey for Home-Based Programs

CBE ID
3726
Endorsement Status
Endorsed
1.1 New or Maintenance
New
Previous Endorsement Cycle
Fall 2022
Is Under Review
No
Next Maintenance Cycle
Fall 2027
E&M Cycle Comments

Effective March 27, 2023, the National Quality Forum (NQF) is no longer the consensus-based entity (CBE) funded through the Centers for Medicare & Medicaid Services (CMS) National Consensus Development and Strategic Planning for Health Care Quality Measurement Contract. Battelle has been selected to oversee the endorsement & maintenance (E&M) of clinical quality and cost/resource use measures. Since the Fall 2022 cycle launched at NQF, measures submitted to this E&M cycle continued along the prior E&M protocols that were in place at time of the Fall 2022 “Intent to Submit.” Battelle took over the E&M work for the Fall 2022 cycle after developers and/or stewards submitted their full measure information to NQF, which for CBE #3726, the most recent measure specifications can be found here: https://p4qm.org/sites/default/files/2024-02/3726.zip

Battelle took over the E&M work beginning with the public comment period to close the E&M committees for the post-comment meeting, convening the CSAC to render a final endorsement decision, and executing the appeals period.

 

1.3 Measure Description
The proposed measures are derived from the Serious Illness Survey for Home-Based Programs, a 36-item questionnaire designed to measure the care experiences of patients receiving care from home-based serious illness programs. Home-based serious illness programs provide care for seriously ill patients at their private residences (i.e., in their homes or assisted living facilities, not in institutions like skilled nursing facilities). Programs are staffed by interdisciplinary teams that provide support for palliation of symptoms, assist with coordination of care, answer questions after-hours, provide medication management, and assist with advance care planning (Cohn et al., 2017). Teams consist of clinicians (e.g., physicians, nurse practitioners) that oversee care, as well as clinical and supportive staff that make home visits (e.g., registered nurses, social workers, CNAs). Programs serve patients with a life expectancy that ranges from 1-5 years and have enrollment criteria based on diagnosis, symptom burden, functional status, and/or prior health care utilization. The five proposed multi-item measures are: 1. Communication 2. Care Coordination 3. Help for Symptoms 4. Planning for Care 5. Support for Family and Friends The two proposed single-item measures are: 1. Overall Rating of the Program 2. Willingness to Recommend the Program Appendix A presents the survey items included in each measure, including response options for each item. Measure scores are “top-box” scores that reflect the percentage of respondents who select the most positive response category(ies) in response to the survey item(s) within the measure. Citation: Cohn J, Corrigan J, Lynn J, Meier D, et al. Community-Based Models of Care Delivery for People with Serious Illness. National Academy of Medicine Discussion Paper. Available at https://nam.edu/wp-content/uploads/2017/04/Community-Based-Models-of-Care-Delivery-for-People-with-Serious-Illness.pdf.
    • 1.14 Numerator

      Measure scores are “top-box” scores that reflect the percent of respondents who select the most positive response category(ies) in response to the survey item(s) within the measure. Therefore, the numerator is the number of respondents who select the most positive response category(ies) in response to the survey items within the measure.

    • 1.15 Denominator

      Survey respondents are patients receiving care from home-based serious illness programs. Survey eligibility criteria and exclusions are detailed below in sections sp.16 – sp.18. Screener questions and tailored non-applicable response options (e.g., I did not want help for my pain) are used to identify respondents who are and are not eligible to respond to survey items included in evaluative measures. Therefore, denominators vary by survey item (and corresponding multi-item measures, if applicable) according to the eligibility of respondents for each item.

    • OLD 1.12 MAT output not attached
      Attached
      1.13a Data dictionary not attached
      No
    • Most Recent Endorsement Activity
      Endorsed Geriatrics and Palliative Care Fall 2022
      Initial Endorsement
      Last Updated
    • Steward
      RAND Corporation
      Steward Organization POC Email
      [email protected]
      Measure Developer Secondary Point Of Contact

      United States

    • Risk adjustment approach
      Off
      Risk adjustment approach
      Off
      Conceptual model for risk adjustment
      Off
      Conceptual model for risk adjustment
      Off